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Updated Version of the IDD Toolkit Released; Supporting Primary Care Providers

Posted by on Tuesday, May 21, 2024 in News.

We are pleased to share with you an updated version of the IDD toolkit. This website provides information for providers of adults with intellectual and developmental disabilities (IDD). It offers best-practice tools and information regarding specific medical and behavioral concerns of adults with IDD, including resources for patients and families. One aspect of the revisions is a greater focus on the role of the self-advocate in their own health care. Watch this brief video highlighting updates.

The IDD Toolkit update is a project of the Vanderbilt Kennedy Center, done with extensive cooperation of Surrey Place in Toronto, Ontario, and funded by the WITH Foundation. The toolkit is an adaption for U.S. use of tools developed by the Canadian team, Tools for the Primary Care of Adults with Intellectual and Developmental Disabilities (2003) with Surrey Place. These tools support primary care clinicians implementing the Canadian consensus guidelines on the primary care of adults with IDD.

An advisory committee of health care clinicians, researchers, faculty, family members, self-advocates, and a Surrey Place representative provided review and recommendations on the toolkit for use in our U.S. health care system.