Lexi Vernon

Alexis Ann Elaine Vernon “Lexi”, born on 12/5/2007, was not given an ABR screening at birth. Her first year was very challenging at times. When she was 14 months old, we realized “why” Lexi wasn’t communicating like other children her age. No speech, no first words, not responding to loud noises…yes, Lexi was diagnosed as...... KEEP READING

Posted on Wednesday, February 15th, 2012 in Families | No Comments »

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Gabriale & PK Barnes

Gabriale In July 2006 my oldest daughter Gabriale, who is now 3, was diagnosed with metopic suture fusion at age 6 months by Dr. Kevin Kelly. This condition required a rather lengthy surgical procedure performed by Dr. Kevin Kelly and Dr. Noel Tulipan in September 2006 at Vanderbilt Children’s Hospital. She also had a follow...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Kael Adams

Our story begins in 2002 while my husband Jason and I were stationed at Schofield Barracks, Hawaii. A year later, we became pregnant with Kael. When I was 5 ½ months, we learned that our son had a rare and complex Congenital Heart Defect known Taussig-Bing Anomaly, (Double Outlet Right Ventricle, Ventricular Septal Defect, Atrial...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Sydney Fort

Sydney was born the third baby of a set of triplets. She weighed only 2 ½ pounds when she was born. She has a sister, Savannah, and a brother, Steven. Over the course of several years, Sydney had three surgeries performed by Dr. Kevin Kelly and the Craniofacial team at Vanderbilt Children’s Hospital to correct...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Sofia Darsinos

Sofia was born on July 14th, 2006. A few weeks after we brought her home, I began to worry about her head. It wasn’t really the shape that alarmed me, it was how it felt. It was like a ridge on the top of her head. You couldn’t see it, but it felt odd. And...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Reagan Rotter

At nine months of age, Reagan was diagnosed with a craniopharyngioma, a benign brain tumor that accounts for an estimated 6% to 10% of childhood brain tumors. Only about 200 new cases are diagnosed in the U.S. each year. After having a perfect history of wellness, Reagan woke up one morning and looked at her...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Joseph Huseby

When Nichole and Craig Huseby adopted Joseph, they were thrilled! He was just ten weeks old and arrived on the birthday of their first child, Lily. Both children are adopted from Colombia in South America. Shortly after returning to the United States, Nichole noticed that her son’s cheeks seemed to have a discoloration or skin...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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James Marshal Hamby

James Marshall Hamby was born very prematurely during the holidays while the Hamby’s were out of town visiting family. His birth as a micro preemie was unexpected and caused many complications.As soon as baby James could travel, he was transferred to Monroe Carell Jr. Children’s Hospital at Vanderbilt. Four months after his birth baby James...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Hannah Huth

When eleven-year-old Hannah was younger she decided she wanted to be a “baby doctor” when she grew up. Thanks to the dedicated doctors at the Monroe Carell Jr. Children’s Hospital at Vanderbilt, Hannah is on her way to reaching that dream. When Hannah was three years old, she was diagnosed with a craniopharyngioma brain tumor....... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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Hank Glascock

Hank was born at 36 weeks 2 days after an uncomplicated pregnancy. We thought he would just be a little early, but when he was born, he only weighed 4lbs 13 oz and had several things wrong. They transferred him to VCH via Angel Transport about 2 hours after he was born, and I was...... KEEP READING

Posted on Friday, September 30th, 2011 in Families | Comments Off

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