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Posted by gl.black@vanderbilt.edu on Friday, September 30, 2011 in Families.

At nine months of age, Reagan was diagnosed with a craniopharyngioma, a benign brain tumor that accounts for an estimated 6% to 10% of childhood brain tumors. Only about 200 new cases are diagnosed in the U.S. each year.

After having a perfect history of wellness, Reagan woke up one morning and looked at her mom, but her eyes seemed to “miss” her. During a visit to the pediatrician two days later, Reagan showed none of the symptoms she had demonstrated earlier. However, the pediatrician was so concerned about the dramatic change in her eye movement that he immediately referred her to Monroe Carell Jr. Children’s Hospital at Vanderbilt. Only thirteen days later she was scheduled for surgery at Children’s Hospital. It was not a moment too soon, for the day prior to the surgery, Reagan could no longer see.

The day of surgery, Dr. Donahue reported that it was very unlikely that Reagan would see again. At best, she would be lucky to see shadows and light. On August 8, 2005, Dr. Pearson removed both the tumor and all of Reagan’s pituitary gland.

As the post-surgical days passed and Reagan regained consciousness, it was apparent that she still had no vision. However, she soon showed remarkable progress and began looking toward toys without the help of sound. To the amazement of all, Reagan was discharged only twelve days after her surgery, perfectly able to crawl and find her pacifier.

Today, Reagan shows no signs of visual or neurological impairment. Although the doctors are unable to fully assess her vision until she is older, they are incredibly pleased with her progress so far.

Reagan’s experience has enriched her with a sense of compassion that most children her age do not possess. Although she may be a redheaded fireball always on the move, she is also incredibly empathetic to the “boo-boos” of her friends and never hesitates to care for an upset friend. She truly is a Miracle Child!

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